Recovery Day 1 - PM Update

Blake is resting so peacefully now.

Blake started off the morning with a mild fever that was expected and still heavily sedated with the plan to wean him completely off sedatives today. This would allow him to move around a little and be more alert with what is going on which is good for his lungs. We were able to quench his thirst with minimal fluids (15 ml or just over 1 tablespoon per hour) early, but as the sedation wore off he started to demand more and became inconsolable. During this time he was not having any pain, just thirsty. Nothing could calm him down and he would wear himself out causing his oxygen saturation to drop and his respiratory rate slowed down uncontrollably to the point we had to keep waking him up when he calmed down to get him to breathe which started the terrible cycle all over. Since his draining tubes were still draining less than taking in the doctors gave him a "Get out of Jail Free" card and let him have a complete Sprite to drink as much as he wanted. Blake jumped on that like a duck on a June bug, but was able to quench his thirst with only a couple ounces. Less than a minute after he was as calm as can be and took a great 3 hour nap.

After the nap we were able to remove his catheter, art-line, and neurological monitor being used for the clinical trial that he is participating in. Blake then asked for Mommy to hold him. The wonderful nursing staff at TCH are some of the most caring people as they will do just about anything to make these kids and parents happy so wish #2 granted. Blake then proceeded to watch several movies, eat some Jello, asked for his Buzz Lightyear, and gave his mom some great snuggle time. During this time he was weaned completely off the sedatives, Epinephrine, or antibiotics and now is only on pain relievers every 2 or more hours. His fever has gone away and has been resting peacefully for a while now and the Fellow said he should be going to a recovery floor tomorrow. He also will be getting at least one drainage tube removed tomorrow morning. The second half of the day was definitely better than the first.

All the prayers from our friends and family have been tremendous and have gotten him to this point. We can't thank you enough.