This morning they took out one chest tube (the medial tube that was near his heart) and they shortened the other two tubes (pleural tubes going to the lungs) and put little bulbs on them instead of long tubes attached to boxes on the ground. This is going help him be a lot more mobile.
They are increasing his dose of Lasix (a diuretic) today because even though he is still very fluid restricted, he is taking in more fluid than he is putting out and it is very important that these little guys are negative in their fluid counts post-op. My pop-psychology in talking with Blake is part of this is in his head; he's been wearing a diaper and he's been really upset to go to the bathroom in it (since he's potty trained), so being more mobile might help us too in encouraging him to go potty.
They also plan to wean him off the regular IV dosage of the Motrin equivalent and go to only Tylenol w/ Codeine as necessary for pain.
His heart buddy, Henry and Henry's brother Charlie came to the hospital this morning for a quick visit. Henry picked out some toys, suckers, and a movie for Blake that he thought he would enjoy during his hospital stay. Henry also showed Blake his scar from his Fontan (which was almost a year ago). Blake was so happy to see Henry and Charlie (even though he had just had morphine to prepare for the chest tube removal), and was talking to them about his favorite subject, Toy Story! Thanks Jeff and Allison for always being so thoughtful and sweet to our family, we can't get over how great Henry looks!
Our charge today is to get Blake fluid negative and get him up and walking around more. We will post more this evening.
1 comment:
Glad to hear that the boy is doing great! Thanks for the updates.
Post a Comment